The past week has been bad, and to top it off, no art time for me.
To sum it up-all last week basically took my time going to appointments for Gillian to get her back on a service that offers her more resources for help. Psych eval, different assessments and for me, heartache. Psych evals are ALWAYS purely awful. To make matters worse, they told me they were going to give her an IQ test-to test for mental retardation. Oh Joy. Yes, I know that doesn't mean she HAS it, but the possibility of it, along with it destroying my dreams for her, its heart wrenching. They ended up qualifying her, but I am not sure under what basis. She already had the diagnosis of Autism, although high functioning, but I am not sure what they put down. They were VERY difficult and asked some very intrusive questions. It really caused me alot of anxiety. Now we are dealing with another possibility :Hearing Loss. She had it early on in her life, but a few years back it seemed to resolve itself. Now we are noticing little things that lead us to believe she may have it again. And, being a former 23 weeker its VERY possible.
With all the NICU time spent, oodles of meds, and ear infections she has had (quite a few) its a strong possibility. I don't think its a severe hearing loss, but I think there is some. Alot of this I seriously thought was due to her sensory issues. Now we are not so sure-I noticed when the teacher called her last week she did not respond, and he called her a couple times. He has noticed that, as well as the helpers in the class room. So that leads me to believe its more than just sensory issues. Today I am taking her to her reg pediatrician for a hearing test to check-I do hope she cooperates. Later this month we have an appt to an audiologist and an ENT doctor as well. I just want all my bases covered. This time I am not overly stressed about this one-I have just come to the conclusion this preemie journey is never going to end.
I have suffered a headache for over 24 hours-actually now close to 48 hours. Its pretty mild at the moment, and I hope it goes away, but its been miserable enough to not want to do much of anything. Its probably a combination of lack of sleep (quite a few sleepless nights) and caffeine withdrawl. I have got to give up this pepsi! I am not sure if this is a good time to be weaning off the pepsi, but its something thats been bothering me-I am SO addicted to it. I hate that!